Brooke Eby
Brooke Eby | |
|---|---|
 Eby in 2019 | |
| Born | December 22, 1988 Potomac, Maryland, U.S. |
| Education | Lehigh University |
| Occupation | Social media personality |
| Known for | ALS advocacy |
Brooke Eby (born December 22, 1988) is an American social media personality who was diagnosed with the terminal motor neuron diseaseamyotrophic lateral sclerosis (ALS) in 2022. An advocate for people with the disease, she has shared her experiences through social media. She is the founder of the support network ALSTogether.
Early life and education
[edit]Eby was born in Potomac, Maryland, and grew up in a suburban home with her family.[1][2] She graduated from Lehigh University in 2010.[1] In her early adolescence she appeared in several TV commercials and as a minor character in the 2003 film Holes.[3]
Career
[edit]Eby began her career in the business sector, holding positions in cities including New York and San Francisco.[1][2] In 2016, she joined Salesforce as a business development manager.[2][4] She was diagnosed with ALS in 2022. She continued in her role at Salesforce as the disease progressed, adapting her work setup as needed.[2][4]
Advocacy
[edit]Following her diagnosis, Eby [2][4] launched social media accounts under the handle "limpbroozkit" to document her experience.[2][4]She had more than 500,000 followers across social media platforms as of 2026. [5]
In 2023, Eby founded ALStogether, a Slack-based community designed to connect people with ALS and their caregivers to share resources and support. She also participated in public speaking engagements at corporate and nonprofit events and conferences.[4] [2] She received the Advocate of the Year award from the ALS Network in March 2026. [6]
Eby has participated in research studies and collaborated with other ALS patients to share insights and experiences.[2] She collaborated with Silverts to create Brook Eby x Silverts, and adaptive clothing line. [7]
Personal life
[edit]Eby first experienced symptoms of ALS in 2018, starting with tightness in her calf and difficulty walking. She was officially diagnosed in March 2022. As the disease progressed, she transitioned from walking aids to a wheelchair and moved back to her parents' home in Potomac for additional support.[2][4]
See also
[edit]References
[edit]- 1 2 3 "I'm just rolling with the punches". Detroit Free Press. November 9, 2024. Archived from the original on 2025-04-11. Retrieved 2025-01-05 – via Pressreader.com.
- 1 2 3 4 5 6 7 8 9 Moscatello, Caitlin (2025-01-02). "When Your Terminal Illness Makes You a TikTok Star". The New York Times. ISSN 0362-4331. Archived from the original on 2025-01-05. Retrieved 2025-01-05.
- ↑ "Brooke Eby".
- 1 2 3 4 5 6 Swindall, Andrea (2023-12-30). "For Brooke Eby, Humor Is Vital to Processing and Sharing Her ALS Diagnosis". Inside Edition. Archived from the original on 2025-01-05. Retrieved 2025-01-05.
- ↑ "How Brooke Eby is Using Humor and Honesty to Redefine Life with ALS". www.brainandlife.org. Retrieved 2026-07-15.
- ↑ Alvarez, Nathan (2026-03-26). "Brooke Eby Honored with Advocate of the Year Award | ALS Network". ALS Network |. Archived from the original on 2026-04-14. Retrieved 2026-07-15.
- ↑ "Influencer Brooke Eby Struggled to Find Stylish Clothing After ALS Diagnosis. Now She's Changing That (Exclusive)". People.com. Archived from the original on 2025-08-22. Retrieved 2026-07-15.
- 1988 births
- Living people
- People from Potomac, Maryland
- Lehigh University alumni
- 21st-century American businesswomen
- American health activists
- American women activists
- Activists from Maryland
- Businesspeople from Maryland
- Salesforce people
- TikTokers from Maryland
- People with motor neuron disease
- American wheelchair users